Webliography – Cystic Fibrosis
April 1, 2011
jaustin32
CYSTIC FIBROSIS
Cystic fibrosis (CF) is a genetic disease that causes the body to produce abnormally thick and sticky mucus that builds up in the lungs and pancreas. The collection of the mucus can lead to decreased lung function, life-threatening lung infections, digestive problems, and reproductive problems. CF is the most common, deadly, inherited disease that affects Caucasians in the U.S.
I have been interested in CF since I began dating my husband 8 years ago. We currently have a niece who is 10 years old that was diagnosed with CF when she was 1 year old. I am always looking for the latest research and up-to-date information to stay on top of treatment options and things to expect in her health and care. Fortunately for use she is doing exceptionally well, but I am always preparing myself for the problems that could arise.
The following websites that I have listed are ones that I visit frequently to gain knowledge and look for updates about cystic fibrosis. These websites are all government or organizational websites that are updated by qualified professionals. All of these sites have “About Us” sections, footnotes/links to where the information came from, are up to date, have objectivity, and authority. All of these sites can be used for educational purposes or for those who are trying to learn/cope with their own/or families disease.
Pub Med Health- Cystic Fibrosis
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001167/
PubMed Health is a consumer health Web site produced by the National Center for Biotechnology Information (NCBI), a division of the National Library of Medicine (NLM) at the National Institutes of Health (NIH). PubMed Health provides up-to-date information on diseases, conditions, injuries, drugs, supplements, treatment options, and healthy living, with a special focus on comparative effectiveness research from institutions around the world. The signs and symptoms, cause, treatment, testing, and prevention are all addressed, as well as a link for support groups.
About Cystic Fibrosis- Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and more than 75 chapters and branch offices nation-wide. The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance. The Foundation’s business model has been recognized by the National Institutes of Health and by publications such as Forbes, The New York Times, The Wall Street Journal and BusinessWeek. Not only does the Cystic Fibrosis Foundation have educational information such as symptoms, treatment, cause, and statistics, it also has ways to donate, volunteer, become a partner, or information about clinical trials.
Cystic Fibrosis – Mayo Clinic
http://www.mayoclinic.com/health/cystic-fibrosis/DS00287
The Mayo clinic complies with the HONcode standard for trustworthy health information. It promotes credible information practices on the Web. This website covers the symptoms, causes, treatment, tests and diagnosis, and coping and support. It also has many other links to other diseases and illnesses.
Cystic Fibrosis – Medicine Net
http://www.medicinenet.com/cystic_fibrosis/article.htm
MedicineNet.com is an online, healthcare media publishing company. It provides easy-to-read, in-depth, authoritative medical information for consumers via its robust, user-friendly, interactive website. Since 1996, MedicineNet.com has had a highly accomplished, uniquely experienced team of qualified executives in the fields of medicine, healthcare, Internet technology, and business to bring the most comprehensive, sought-after healthcare information anywhere. Nationally recognized, doctor-produced by a network of more than 70 U.S. board-certified physicians, MedicineNet.com is the trusted source for online health and medical information. This website provides the cause, treatment, symptoms, testing, information about how to live with CF, and the outlook for those living with CF. Medicine Net provides many links not only about CF but about many other diseases and illness. There are quizzes to test knowledge, information about medications, and pictures to help increase knowledge.
Cystic Fibrosis – Genetic Home Reference- The U.S. Government’s Directory
http://ghr.nlm.nih.gov/condition/cystic-fibrosis
Genetics Home Reference is the National Library of Medicine’s web site for consumer information about genetic conditions and the genes or chromosomes related to those conditions. This website really addresses the genetic side of cystic fibrosis and what exactly genetically goes wrong for CF to be present.
Cystic Fibrosis – Medline Plus
http://vsearch.nlm.nih.gov/vivisimo/cgi-bin/query-meta?v%3Aproject=medlineplus&query=cystic+fibrosis
Medline Plus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. Medline Plus offers reliable, up-to-date health information, anytime, anywhere, for free. You can use Medline Plus to learn about the latest treatments, look up information on a drug or supplement, find out the meanings of words, or view medical videos or illustrations. You can also get links to the latest medical research on your topic or find out about clinical trials on a disease or condition.
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